Recently, my daughter Bridget came across an article that I found very interesting. Do you have a long history of health issues with symptoms that change daily or monthly, but never go away? Think lyme disease until proven otherwise. Suzy Cohen, author of this article states that lyme disease is frequently misdiagnosed.
It mimics other diseases so it is hard to pin down. Many people have been told that they have Fibromyalgia, Parkinson's, Rheumatoid Arthritis, Multiple Sclerosis, Chronic Fatigue Syndrome to name a few. Suzy Cohen has great information in this article on what kind of doctor you need to seek out (Lyme Literate) and the best labs for testing. Her lab recommendations are more reliable than the standard ELISA tests which are frequently wrong. One statistic she read said that about 7 out of every 10 tests will come back "negative" when you are positively infected. Lyme is a hard one because no two people have the same symptoms, which come and go. My daughter Bridget Gebbie was one of those statics. She was tested 3 TIMES for lyme and guess what? You guessed it, negative each and every time. Bridget has had lingering symptoms for years. The biggest balloon to pop right now is her BONE CRUSHING CHRONIC FATIGUE. Thanks to Suzy Cohen for getting the word out, Bridget was retested and this time the test came back positive for lyme. It is bitter sweet, but now we have a diagnosis and she started her protocol about a week ago and is on her journey to healing.
Recently The Dr. Oz Show did a special on lyme disease awareness. Here are 10 facts that you should be aware of:
1. Children are at the highest risk of contracting Lyme disease and are more vulnerable to central nervous system infections.
2. Lyme disease has been called “The Great Imitator” and can be mistaken for ALS, MS, chronic fatigue syndrome, fibromyalgia, Alzheimer’s, Parkinson’s, autism and other difficult-to-diagnose multi-system illnesses.
3. Studies show that standard laboratory tests recommended by the CDC to diagnose Lyme disease miss approximately half of actual cases, leading to misdiagnosis and an infection that is more difficult to treat.
4. More than 63% of patients treated for Lyme disease will continue to suffer symptoms that can be debilitating.
5. The CDC estimates that there are 300,000 new cases of Lyme disease each year in the United States.
6. Lyme disease has been reported in every state except Hawaii and has been found on every continent except Antarctica.
7. Lyme disease has six times more new cases each year than HIV/AIDS, yet it receives less than 1% of the funding.
8. Fewer than 50% of patients with Lyme disease recall a tick bite or rash.
9. Ticks can carry many different types of bacterial, viral and parasitic infections – some life-threatening – which can further complicate tick-borne disease diagnosis, treatment and recovery.
10. Transmission of Lyme disease and other infections can take place in a matter of minutes, particularly if the tick is not removed properly.
So please check out these articles if you or anyone else you know has a history of pain, chronic fatigue, brain fog, etc.. Because what if....
Help us spread awareness and do the #LymeDiseaseChallenge